Wednesday, April 1, 2015

Post op Update 3

It has been a little bit of a crazy 24 hours. Emma was making slow and steady progress yesterday. They were able to completely take her off of one of the inotropes, epinephrine, and significantly wean on her dopamine.  They also took her completely off her morphine and versed drips.   Emma's numbers were looking very much improved and the plan was to optimize her overnight and pull the tube this morning; however, overnight, her belly became more distended, she looked more puffy, and some of her numbers were up.

So today has been a bit of a juggling act getting her regulated.  They began a lasix drip to try to pull off excess fluid.  They also decided to leave her breathing tube in until they could adequately assess the drainage tube issue.  In the meantime, we went back up on sedation and got a heart Echo to see how her function and tricuspid valve regurgitation were doing.  

This afternoon, the IR doctor who placed  the drain brought up an ultrasound machine to try to determine why the drain was not draining much since her belly was a little bit bigger.  To all of our surprise, the reason her drain wasn't putting out much was because there is very little fluid in her abdomen.  It is in a good place, so we will leave it in for right now to let what little is in there out of there. So, the culprit for the extended belly this time is extreme gas and bloating.  We are venting her belly to try to help this pressure.

After her sedation/pain meds wore off this evening, we pulled her vent tube.  Now we are trying to get her to cough up all of the junk in her lungs and sit up in her chair to help with her Glenn headaches.  

Please pray for:
1. Her lungs to stay open and clear
2. Her belly to not be so bloated 
3. Her mood to improve ��
4. Her heart function/tricuspid valve to look good
5.  For her recovery to continue to improve 

God is good!  All the time!  God is good!




Tuesday, March 31, 2015

Post Op Update 2

Emma is recovering in the cvicu. We all had a long night. She got back up to the unit around between eleven to midnight. Sarah and I each averaged around 2 to 3 hours of sleep. 

Little rough course when she first got up here but settled out as the night went on. Now we are  just weaning down on multiple inotropic medications and trying to move her more towards extubation. All of her numbers and labs are looking pretty good which are answered prayers. So right now we are just staying the course and making adjustments as needed. Emma is "eating" through pain and sedation meds.  We hate seeing her in so much pain.

We appreciate all the thoughts and prayers as we continue on this journey. God is good, all the time... And all the time,  God is good!

Daddy Scott

Monday, March 30, 2015

Post op 1

Prayer Requests:

1.  Emma is running a fever and had to be placed on a cooling blanket and packed in cold clothes.

2.  Her blood pressure is low and she is requiring quite a bit of volume and inotropic support in the interim.

3. She is not paralyzed so she is trying to remove her breathing tube even though she is not ready and is in pain when her meds wear off.

It will be a busy night keeping her calm and dealing with post op issues. 

Thank you for the continued prayers.




Surgery Update 5

We just spoke to Dr. Baird and everything went well.  He did the bidirectional Glenn, repaired her tricuspid valve, and took the stent out of the LPA.  Her function was already slightly improved and all her numbers look good.  She did have some excess bleeding post op, but Dr. Baird stayed in the OR until it had stopped.  Overall, he was pleased with the procedure.  Now we wait and see how the right ventricle recoups with less volume overload.  

We hope to see her in about an hour or so.  They will keep her sedated and incubated tonight to let her body heal.

Please continue to pray for our sweet girl as the next few days will be hard for her.  Post Glenn tends to bring severe headaches.  

Pray that her heart function will return to normal and her body will accept this new repair.

Pray for the doctors, nurses, and respiratory therapists caring for Emma.

Pray for a smooth evening without much bleeding, pain, rhythm or blood pressure issues.

God is good!  All the time! God is good! 


Surgery Update 4

We were moved out of the surgical waiting room since it closes at 7pm.  We are now waiting in the CVICU waiting room for updates.  The CVICU nurse just informed us that they were finishing up and beginning to close her chest.  It will be awhile before we get to see her, but apparently she is doing well.  Thank you again for the continued prayers.

Surgery Update 3

Emma is in bypass and is doing well.  Now the reconstruction and repair begins.  Please be praying for Dr. Baird and his team as they skillfully and carefully work on my precious girl's heart.



Surgery Update 2

Emma is doing good.  They have all of her lines in and are beginning to make the incision.  We will have another update around 4:00.  Please continue to pray for our sweet girl.